![]() | Respiratory Papillomatosis UK DatabaseThe Northern Medical Physics and Clinical Engineering Department | ![]() ![]() |
Recurrent Respiratory Papillomatosis (RRP) - sometimes referred to as Laryngeal Papillomatosis - is a condition caused by the Human Papilloma Virus (HPV). This results in warts in the airway which can make it difficult to breathe and speak. RRP is a rare condition but is more common in young people.
There is no cure for RRP, therefore patients usually require regular surgery to remove the warts. Although the most common treatment is repeated surgery, nobody knows what the best medical therapy is.
We want to determine the most effective and safest treatments for RRP. Because RRP is so rare, we need to gather information from as many people with RRP as possible.
We have expanded the Airway Intervention Registry (AIR) to collection data from all RRP patients around the whole of the UK. The RRP data collection will help us to:
If you would like to participate in this study, please contact your treating consultant.
For any other information please contact us on nuth.NMPCE.Air@nhs.net
Keep checking this page for the latest numbers!
Current number of patients recruited | |||
---|---|---|---|
Adults | Children | Totals | |
Male | 112 | 32 | 144 |
Female | 48 | 20 | 68 |
Totals | 160 | 52 | 212 |
Last updated: 15-01-2021
Participating Sites |
---|
Alder Hey Childrens NHS Foundation Trust |
Barts Health NHS Trust |
Basildon & Thurrock University Hospitals NHS Foundation Trust |
Bedfordshire Hospitals NHS Foundation Trust |
Belfast Health and Social Care Trust |
Betsi Cadwaladr University Health Board |
Birmingham Women s and Childrens Hospital NHS Foundation Trust |
Blackpool Teaching Hospitals NHS Foundation Trust |
Bradford Teaching Hospitals NHS Foundation Trust |
Cambridge University Hospitals NHS Foundation Trust |
Cardiff and Vale University Health Board |
County Durham and Darlington NHS Foundation Trust |
Doncaster and Bassetlaw Hospitals NHS Foundation Trust |
East Sussex Healthcare NHS Trust |
Frimley Park Hospital NHS Foundation Trust |
Great Ormond Street Hospital for Children NHS Foundation Trust |
Hywel Dda Health Board |
Imperial College Healthcare NHS Trust |
Isle of Wight NHS Trust |
Leeds Teaching Hospitals NHS Trust |
Lewisham and Greenwich NHS Trust |
Liverpool University Hospitals NHS Foundation Trust |
London North West Healthcare NHS Trust |
Manchester University Hospitals NHS Foundation Trust |
NHS Grampian |
NHS Greater Glasgow and Clyde |
NHS Lothian |
NHS Tayside |
North Cumbria University Hospital NHS Trust |
Nottingham University Hospitals NHS Trust |
Oxford University Hospitals NHS Foundation Trust |
Pennine Acute Hospitals NHS Trust |
Salford Royal NHS Foundation Trust |
Sheffield Childrens NHS Foundation Trust |
South Tees Hospitals NHS Foundation Trust |
South Tyneside and Sunderland NHS Foundation Trust |
St Georges Univeristy Hospitals NHS Foundation Trust |
Stockport NHS Foundation Trust |
Swansea Bay University Health Board |
The Newcastle upon Tyne Hospitals NHS Foundation Trust |
The Shrewsbury and Telford Hospital NHS Foundation Trust |
University College London Hospitals NHS Foundation Trust |
University Hospital Southampton NHS Foundation Trust |
University Hospitals Birmingham NHS Foundation Trust |
University Hospitals of Derby and Burton NHS Foundation Trust |
University Hospitals Plymouth NHS Trust |
Wirral University Teaching Hospital NHS Foundation Trust |
( Click on the map marker to visit the trusts website ) |
Procedure | Number |
---|---|
Cold steel forceps | 31 |
Microdebrider | 330 |
CO2 laser | 54 |
KTP laser | 3 |
Pulsed dye laser | 7 |
Radiofrequency ablation | 31 |
Monopolar suction diathermy | 1 |
Plasma coagulation | 0 |
Other procedures | 0 |
Adjuvant therapies | 86 |
If you or your child has RRP and you have already given informed assent/consent to data being entered into the RRP database you can submit Quality of Life (QoL) questionnaires anonymously online whenever you like by clicking on one of the links below.
Click here to submit QoL data - ADULTS - 16 years and over
or
Click here to submit QoL data - CHILDREN - under 16 years
You will need your Quality of life (QoL) ID
This is the 8 character code which was given to
you when you consented to taking part in the RRP research project.
Any Quality of Life data which you submit via this website will not be
sent directly to your
local treating hospital/consultant.
If you are worried about your health for any reason
you should contact your local treating hospital/consultant.
This study is funded by the National Institute for Health Research (NIHR) [Research for Patient Benefit programme (Grant Reference Number PB-PG-0416-20037)]. The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.
It is also supported by the National Institute of Health and Care Excellence (NICE), who will use its results to update national guidance
If you would like to participate in this study, please contact your treating consultant.
For any other information please contact us on nuth.NMPCE.Air@nhs.net
Mr Adam Donne
(Consultant Otolaryngologist)
Dr Andrew Sims
(Clinical Scientist)
Julie Burn
(Clinical Scientist)
Kim Keltie
(Research Scientist)
Emma Belilios
(Administrator)
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