Respiratory Papillomatosis UK Database The Northern Medical Physics and Clinical Engineering Department

• About
• Information
• Recruitment
• Participants
• Results
• Surveys
• Funding
• Contacts

About Recurrent Respiratory Papillomatosis (RRP)

Recurrent Respiratory Papillomatosis (RRP) - sometimes referred to as Laryngeal Papillomatosis - is a condition caused by the Human Papilloma Virus (HPV). This results in warts in the airway which can make it difficult to breathe and speak. RRP is a rare condition but is more common in young people.

The Question...

There is no cure for RRP, therefore patients usually require regular surgery to remove the warts. Although the most common treatment is repeated surgery, nobody knows what the best medical therapy is.

Our Research Study...

We want to determine the most effective and safest treatments for RRP. Because RRP is so rare, we need to gather information from as many people with RRP as possible.

We have expanded the Airway Intervention Registry (AIR) to collection data from all RRP patients around the whole of the UK. The RRP data collection will help us to:

1. Identify which treatments work best for RRP
2. Reduce the number of treatments/hospital visits for RRP patients
3. Reduce the number of complications seen with RRP treatments

Information

If you would like to participate in this study, please contact your treating consultant.
For any other information please contact us on nuth.NMPCE.Air@nhs.net

Recruitment

Study recruitment start date

1st April 2018

Keep checking this page for the latest numbers!

Number of Patients Recruited to Study

Current total 218

Current number of patients recruited
	Adults	Children	Totals
Male	113	35	148
Female	49	21	70
Totals	162	56	218

Last updated: 09-04-2021

Participants

Results

Surveys

Quality of Life Questionnaire

If you or your child has RRP and you have already given informed assent/consent to data being entered into the RRP database you can submit Quality of Life (QoL) questionnaires anonymously online whenever you like by clicking on one of the links below.

Click here to submit QoL data - ADULTS - 16 years and over

or

Click here to submit QoL data - CHILDREN - under 16 years

You will need your Quality of life (QoL) ID
This is the 8 character code which was given to you when you consented to taking part in the RRP research project.

Funding & support

This study is funded by the National Institute for Health Research (NIHR) [Research for Patient Benefit programme (Grant Reference Number PB-PG-0416-20037)]. The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.

It is also supported by the National Institute of Health and Care Excellence (NICE), who will use its results to update national guidance

British Association for Paediatric Otorhinolaryngology (BAPO)

British Laryngological Association (BLA)

ENT UK

Contacts

If you would like to participate in this study, please contact your treating consultant.
For any other information please contact us on nuth.NMPCE.Air@nhs.net

 

Clinical Lead

Mr Adam Donne

(Consultant Otolaryngologist)

Scientific Lead

Dr Andrew Sims

(Clinical Scientist)

 

 

Database developer

Julie Burn

(Clinical Scientist)

Data analyst

Kim Keltie

(Research Scientist)

 

 

Communications

Emma Belilios

(Administrator)

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