Respiratory Papillomatosis Database The Northern Medical Physics and Clinical Engineering Department

• About
• Information
• Recruitment
• Participants
• Results
• Surveys
• Funding
• Contacts

About

The Problem...

• Recurrent Respiratory Papillomatosis (RRP) is a condition which causes wart-like growths in the airway.
• These warts can make it difficult to breathe and speak.
• RRP is a rare condition but is more common in young people.
• There is no cure for RRP, therefore patients usually require regular surgery to remove the warts.
• Although the most common treatment is repeated surgery, nobody knows what the best medical therapy is.

Our Solution...

1. Identify which treatments work best for RRP
2. Reduce the number of treatments/hospital visits for RRP patients
3. Reduce the number of complications seen with RRP treatments
4. Improve patient symptoms

Information

If you would like to participate in this study, please contact your treating consultant.
For any other information please contact us on NMPCE.air@nuth.nhs.uk

Recruitment

Study recruitment start date

1st April 2018

Keep checking this page for the latest numbers!

Number of Patients Recruited to Study

Current total 95

Current number submitting QoL Data:
	Adults	Children	Totals
Male	42	23	65
Female	17	13	30
Totals	59	36	95

Last updated: 15-08-2019

Participants

Results

Surveys

Quality of Life Questionnaire

If you or your child has RRP and you have already given informed assent/consent to data being entered into the RRP database you can submit Quality of Life (QoL) questionnaires anonymously online whenever you like by clicking on one of the links below.

Click here to submit QoL data - ADULTS - 16 years and over

or

Click here to submit QoL data - CHILDREN - under 16 years

You will need your Quality of life (QoL) ID
This is the 8 character code which was given to you when you consented to taking part in the RRP research project.

Funding & support

This study is funded by the National Institute for Health Research (NIHR) [Research for Patient Benefit programme (Grant Reference Number PB-PG-0416-20037)]. The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.

It is also supported by the National Institute of Health and Care Excellence (NICE), who will use its results to update national guidance

British Association for Paediatric Otorhinolaryngology (BAPO)

British Laryngological Association (BLA)

ENT UK

Contacts

If you would like to participate in this study, please contact your treating consultant.
For any other information please contact us on NMPCE.air@nuth.nhs.uk

 

Clinical Lead

Mr Adam Donne

(Consultant Otolaryngologist)

Scientific Lead

Dr Andrew Sims

(Clinical Scientist)

 

 

Database developer

Julie Burn

(Clinical Scientist)

Data analyst

Kim Keltie

(Research Scientist)

 

 

Communications

Emma Belilios

(Administrator)

Last Updated: 05-04-2019 - 11:32 am Privacy and Cookies Policy

Contact Information: For technical problems:- Technical For site content:- Content